3 Amendments of Urszula KRUPA related to 2008/0218(CNS)
Amendment 13 #
Proposal for a recommendation
Recital 5
Recital 5
(5) Because of their low prevalence and their specificity, rare diseases call for high cost of treating rare diseases and their specificity, they call for international programmes and a global approach based on special and combined efforts to prevent significant morbidity or avoidable premature mortality, and to improve quality of life and socio-economic potential of affected persons.
Amendment 14 #
Proposal for a recommendation
Recital 8
Recital 8
(8) In order to improve the coordination and coherence of national, regional and local initiatives and cooperation between research centres addressing rare diseases, all relevant national actions in the field of rare diseases should be integrated into national plans for rare diseases.
Amendment 23 #
(5) include in the national plans provisions designed to ensure equitablfree access to high quality care, including diagnostics, treatments and orphan drugs, to all rare disease patients throughout their national territory with a view to ensuring equitable access to quality care on the basis of equity and solidarity throughout the European Union.