3 Amendments of Evangelia TZAMPAZI related to 2008/0218(CNS)
Amendment 18 #
1. Establish national plans for rare diseases in order to ensure to patients with rare diseases universal access to high quality care, including diagnostics, treatments and orphan drugs, as well as rehabilitation and habilitation for those living with the disease throughout their national territory on the basis of equity and solidarity throughout the EU, and in particular:
Amendment 20 #
(5) include in the national plans provisions designed to ensure equitable access to high quality care, including diagnostics, treatments and orphan drugs, together with rehabilitation and habilitation for those living with the disease for the benefit of all rare disease patients throughout their national territory with a view to ensuring equitable access to quality care on the basis of equity and solidarity throughout the European Union.
Amendment 32 #
(4) include in the national plan for rare diseases provisions aimed at fostering research, including public health and social research, in the field of rare diseases, especially with a view to the development of tools such as transversal infrastructures as well as disease-specific projects, and rehabilitation and habilitation programmes for the duration of a rare disease.