Activities of Dorette CORBEY related to 2008/0218(CNS)
Plenary speeches (1)
Rare diseases (debate)
Amendments (6)
Amendment 24 #
Amendment 28 #
(1) implement a European Union common definition of rare diseases as those diseases affecting no more than 5 per 10 000 persons, as a number for the whole European Union, but it is very important to know the exact distribution for each Member State;
Amendment 31 #
(3) foster participation of national researchers and laboratories in research projects on rare diseases funded at Community level and make use of the possibilities offered by Regulation (EC) No 141/2000 on orphan medicinal products;
Amendment 38 #
(c) establisharing Member States' assessment reports on the therapeutic added value of orphan drugs at EU level within the EMEA where the relevant European knowledge and expertise is gathered, in order to minimise delays for access to orphan drugs for rare disease patients;
Amendment 40 #
(ca) structural support for investment in the Orphanet database to ensure ease of access to information concerning rare diseases;
Amendment 43 #
(2a) Provide funding for patient organisations so that they can continue to operate as independently as possible;